Myasthenia Gravis Association of B.C.

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From the desk of : Dr Oger - Update of Genome Study

Our research group has distinguished itself at the International level: In the thymectomy trial we have enrolled 9 patients which is the second best site IN THE WORLD out of 52 groups of researchers.  The GWAS (Genome wide advanced screening) project is progressing rapidly and there will be 1, 000 MG patients having volunteered.  Over 100 of them come from Vancouver. 

I was expecting around 200 but our start was slow and all the starting positions had been filled.  We still remain with 19 positions to be filled.  If anyone would like to volunteer, please contact us at 604-822-7175 and ask to speak to Simon.



If you would like to donate to Dr Ogers research, you may mail your cheques to the MGABC @ 2805 Kingsway, Vancouver, BC V5R 5H9 and we will forward them to Dr. Oger  OR  you may mail them directly to the University of BC.  If you make such a donation, please let us know so we may recognize your donation in our newsletter.

Dr. Joel Oger 
UBC Hospital, Room S-159
2211 Westbrook Mall, Vancouver, BC V6T 2B5

Please note: The account number for MG Research at UBC has changed. It is now: 20R-55546.
All donations are deductible and a tax receipt will be issued.




Educa
tional Material Available : PLEASE CONTACT the MGABC directly.

1. Myasthenis Gravis Facts
3. Survival Guide
6. M.G. 101 - Comprehensive information on MG from history to up-to-date treatment
7. Drug pamphetes :
___Mestinon, ___Imuran, ___ Prednisone, ___Cyclosporine, ___Cellcept
8. Drugs that may aggravate MG NEW 2012*
9. Thymectomy Pamphlet
10. Plasmapheresis Pamphlet
11. Intervenous Gamma Globulin (IVIg) for the treatment of Myasthenia Gravis
12. Ocular Myasthenia Gravis
13. Fresnel Prism to correct doubel vision
15. Dentistry and MG
16. Pregnancy and MG
17. MG in Children and Adolescents with MG NEW*
18. School Package for Children w/Myasthenia Gravis
19. Caring for Children and Adolescents
20. Emergency Care of Myasthenia Gravis 
21. Mestinon Under the Tongue - A possible emergency measure
22. Accessment & Management of Speech and Swallowing in Myasthenia Gravis
23. Hospital Package: Nursing Care of the Myasthenic, Hospitals can be dangerous, Anesthesiology Drugs.
24. Alternate Therapies - Vitamins, Minerals, Herbs& other supplements, MG and Mercury Amalgam
25. Medic Alert Application
26. MG ID/Emargency Alert Card NEW*
27. Tips on Applying for CCP Disability Benefits
27a. Advocacy Access Help Sheet
28. A Practical Guide to Myasthenia Gravis by Keesey&Sonshine - Excellent Booklet!
29. Providing Emotional Support for a Relative w/MG
30. Disablilty Tax Credit - Form T2201 or download the forms @ www.cra-arc,gc.ca/E/pbg/tf/tf2201 

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