From the desk of : Dr Oger - Update of Genome Study
Our research group has distinguished itself at the International level: In the thymectomy
trial we have enrolled 9 patients which is the second best site IN THE WORLD out of 52 groups of researchers. The GWAS
(Genome wide advanced screening) project is progressing rapidly and there will be 1, 000 MG patients having volunteered.
Over 100 of them come from Vancouver.
I was
expecting around 200 but our start was slow and all the starting positions had been filled. We still remain with 19
positions to be filled. If anyone would like to volunteer, please contact us at 604-822-7175 and ask to speak to Simon.
If you would like to donate to Dr Ogers research, you may mail your cheques to the MGABC @ 2805 Kingsway, Vancouver, BC V5R 5H9 and we will forward them to Dr. Oger
OR you may mail them directly to the University
of BC.
Dr. Joel Oger
UBC Hospital, Room S-159
2211 Westbrook Mall, Vancouver,
BC V6T 2B5
Please note: The account number for MG Research at UBC has
changed. It is now: 20R-55546.
All donations are deductible and a tax receipt will
be issued.
Educational
Material Available : PLEASE CONTACT the MGABC directly.
1. Myasthenis Gravis Facts
2. Successful Coping with Chronic Illness
3. Survival
Guide
6. M.G. 101 - Comprehensive information on MG from
history to up-to-date treatment
7. Drug pamphetes :
___Mestinon, ___Imuran, ___ Prednisone, ___Cyclosporine, ___Cellcept
8. Drugs to Avoid w/Myasthenia Gravis (updated 2004)
9. Thymectomy Pamphlet
10. Plasmapheresis Pamphlet
11. Intervenous Gamma Globulin (IVIg) for the treatment of Myasthenia Gravis
12. Ocular Myasthenia Gravis
13. Fresnel Prism to correct doubel vision
14.Aids for droopy eyelids
- Lundie Loop for Glasses and Calvin Eye Lift Tapes
15.
Dentistry and MG
16. Pregnancy and MG
17. MG in Children and Adolescents
18. School Package for Children w/Myasthenia Gravis
19. Congenital
Myasthenia Gravis
20. Emergency Care of Myasthenia Gravis
21. Mestinon Under the Tongue - A possible emergency measure
22. Accessment & Management of Speech and Swallowing in Myasthenia Gravis
23. Hospital Package: Nursing Care of the Myasthenic, Hospitals can be dangerous,
Anesthesiology Drugs.
24. Alternate Therapies - Vitamins, Minerals, Herbs&
other supplements, MG and Mercury Amalgam
25. Medic Alert Application
26. Myasthenia Gravis Identification Card
27. Tips on Applying
for CCP Disability Benefits
27a. Advocacy Access Help Sheet
28. A Practical Guide to Myasthenia Gravis by Keesey&Sonshine
29. Providing Emotional Support for a Relative w/MG
